Hi, this is Oona’s mom Sara. Oona is a 7-year-old DeafBlind child with CHARGE syndrome. I hope that sharing our journey with the world will be helpful to other families and build community. I write about a broad range of topics that affect Oona’s opportunities and quality of life here in the Oonaverse, including education policy, linguistics, health services, social justice, etc. I hope you enjoy the blog and comment.